My recovery is going pretty well. I’ve had to get serious about my diagnosis and make some changes in my life. Some days I’ve got all the energy in the world to tackle this mess. Those days, I’m all “I am woman, hear me concentrate on a high carb diet, get serious about my exercise program, drink gallons of water and avoid alcohol and prescription meds.” Sorry, Helen. Other days, I’m bored with it and am ready to try out a new disease. Today is one of those days.
A few weeks ago, my doctor set out to try to find a specialist in my particular disorder, no easy feat when you consider that fewer than 1 in 20,000 have Acute Intermittent Porphyria. But she found one. Yay, right?! And it’s only about four hours from here rather than 8. Another yay! They had to send all my records to this guy to see if I qualify to see him without more expensive testing.. It’s like sorority Rush Week. Fingers crossed that I’m considered AIP material, girls! My mom has the genetic marker, so I should be, like, a legend, right? No pushing pennies down the hall with my nose. Or peeing in yet another cup.
So then a whole lot of nothing happened. I assume that the various offices involved communicate via carrier pigeon because there was a lot of waiting. Until last week. My doctor’s nurse called me and said they wanted me to come back in for a follow up. I love my doctor, but her nurse is a bit off-putting. He takes himself too seriously. It’s rather like having a discussion with Dr. Drake Ramoray.
I asked him if he had heard from the specialist yet. There was a long pause. “Yes,” he said slowly, after a long pause. “That’s exactly what we need to talk to you about. We will see you on Tuesday.”
I would not have been at all surprised if he had told me the specialist was my half-brother and he is pregnant with my child. I rolled my eyes so hard I may have sprained them. But I’ll play along. Everybody needs their little dramas.
Will I be number one pledge this Rush Week? Will we find out if I need more pokes and prods to get the coveted appointment? Will the nurse discover his evil twin has stolen his identity and purchased a dozen toy poodles? Stay tuned!