Why doesn’t Hallmark have a “Dear Son, I’m Sorry For Peeing In The Gene Pool” card? They’ve missed the boat here. I owe the Padawan a greeting card at the very least.
So I got up last Friday to discover that the Padawan was already up. I should have seen a red flag waving right then. This is the kid who hasn’t willingly seen a sunrise since he became aware the earth actually revolves around the sun. But he was up.
When he asked his dad for “mutton chops supreme,” we made an appointment with the doctor. When he began hallucinating that his dad was light saber dueling with Squish, we went on the the Emergency Room. When he told us that Iron Man was abandoned by his parents at the age of one because they were billionaires and couldn’t be bothered to put him up for adoption, we were certain he was going to die. Kid knows his super heroes. Usually.
They ran a few tests. The first was an EEG. We sat in on it, eyes glued to the screen, pretending we knew exactly what we were looking at as the computer scribbled out patterns like the world’s most expensive etch-a-sketch. The computer drew graceful lines here, a few frantic scribbles there, every once in a while the cursor backing up the screen and marking places of interest. Sometimes the parallel lines intersected. Was that bad? Sometimes they were slow and sleepy, sometimes they bounced around like an itch his brain was trying to scratch.
I tried not to look at the socks on his feet, the ones I had had to put on for him that morning because he was unable to follow simple directions well enough to dress himself. They were his brother’s socks,the only ones I could find in a hurry, too small for him, grey heel and toe not quite lining up, rather like the child whose brainwaves we studied with such intensity.
The boy in the bed was a stranger to me, like someone had been called on to impersonate our son but didn’t have the act down pat yet, words a little too sharp, expression guarded, as if he didn’t quite know who we were, either.v The lights were on, but no one was home. And at that moment, my biggest concern wasn’t whether he would survive, but whether or not I would ever get back the son that I knew.
God is good. All the stars were in alignment that day. Not only did they have openings for MRI and EEG (usually it takes a week or more to schedule each because they only have one machine), the neurologist himself just happened to be present for the whole test. He was the one responsible for the screen backing up at seemingly random points, and he saw what he needed to see. He came and got us in the middle of the test.
A seizure, he said, judging by the irritability of the brainwaves. Really? How is he different? Aren’t all teenagers irritable? Now we had an answer that begged another question. A seizure, but why?
We went back to the ER to wait for the MRI to tell us whether the Padawan’s rare blood disorder could have caused an intercranial tumor. I had to stop him from messing with the IV in his arm. He rolled his eyes and complained that I was fussing over him. For the first time in hours, he sounded like himself.
I smiled, the terrifying episode over.
“Awww,” he cooed suddenly. “Look at the leopard geckos on that guy’s shoulders!”
Okay, so not QUITE over. But mostly. The MRI was clear. No tumor. The ER doctor was patient and encouraging as he gave us our parting instructions.
Fast forward to today and our follow-up appointment. Epilepsy. Genetic. What? No one in this family has crappy genes. Oh, wait…
Will the real genetic train wreck please stand up?
Ummm. Let’s see. Things known to be inherited…
Who has asthma?
Poor vision? Worn glasses since kindergarten AND had an eye patch?
What about severe allergies?
Yep, me, too.
Liver disorder with 50% rate of inheritability most people have never heard of that could cause… what is the word I’m looking for…seizures?
Me again. Can we stop now?
That’s – hey, wait. That might be his dad.
Looks like the Padawan got cursed with more than just my stunning good looks. ***
We ran a few errands today after the doctor’s appointment, then we got treats at McDonalds. I gave him my Happy Meal, though. If he’s going to get something deadly from me, it might as well be a cheeseburger.
***true story. He saw a photo of me as a little girl and said “Aww, a picture of little me! Wait. Why I am wearing a dress?” That’s how much he looks like me. Even he can see it.